Exploring the qualitative experiences of rural and coastal people with lung cancer and their informal carers’ in accessing and engaging in their cancer care pathway
Objective: People with lung cancer (PWLC) in rural areas experience unique inequalities in care compared to their urban counterparts. Lincolnshire has some of the most deprived parts of the UK, particularly in rural and coastal areas, where people face significant barriers to accessing care. This study aims to explore how patient and carer characteristics and factors related to location interact to influence engagement with the lung cancer care pathway. Methods: Qualitative interviews conducted between Jan–May 2024 with PWLC diagnosed within the last 6 months (n=30), and their informal carers (n>15), who reside in Lincolnshire, UK. Framework analysis informed by the COM-B model of behaviour change was used to thematically analyse facilitators and barriers to patient engagement. Results: Initial findings indicate that PWLC were distressed by delays in early investigations and treatment and struggled with the communication of their diagnosis and treatment options. Support from family, friends, and the wider community was integral in managing physical and psychological challenges and empowering engagement. Accessing specialist treatment required travelling long distances and imposed significant financial burden. Final analyses will be presented. Conclusion and Clinical Implications: By identifying and understanding 290 factors that may impact on patient engagement, we can inform patient-orientated care tailored to the needs of rural PWLC. Our findings will support the development of an intervention to improve PWLC’s engagement in their care pathway in rural and coastal settings.
History
School affiliated with
- Lincoln Institute for Rural and CoastalHealth (Research Outputs)
- School of Health and Social Care (Research Outputs)
- School of Health and Care Sciences (Research Outputs)
- College of Health and Science (Research Outputs)